Date of this Version
Kallas, S. (2020). Terms of Service: The Use and Protection of Genomic Information by Companies, Databases, and Law Enforcement. Undergraduate Honors Thesis. University of Nebraska-Lincoln.
Private genomic companies have become a popular trend in the last two decades by providing customers with information regarding their ancestry and health risks. However, the profiles received from these companies can also be uploaded to public databases for various purposes, including locating other family members. Both testing companies and public databases have private interests, and both are at risk of law enforcement intervention for the purpose of forensic familial searching. There is little federal legislation protecting the privacy of an individual’s genetic profile. Consequently, it has been up to federal agencies, state laws, and judicial precedents to prevent the misuse of genetic information in the modern age.