"“I Just Stay in the House So I Don’t Need to Explain”: A Qualitative I" by Gillian Hendry, Claire Wilson et al.

Department of Special Education and Communication Disorders

 

Department of Special Education and Communication Disorders: Faculty Publications

Document Type

Article

Date of this Version

2022

Citation

MDPI Disablities (2022) 2: 145-163

doi: 10.3390/disabilities2010012

Comments

Copyright 2022, the authors. Open access

License: CC BY 4.0

Abstract

Research has shown that persons with disabilities continually face discrimination. More research attention has focused on individuals’ experiences of visible disability, despite evidence that there are higher numbers worldwide of people with invisible disabilities. As such, persons with invisible disabilities can feel under-represented in disability literature. A qualitative study was conducted to address this. Twenty-five persons with an invisible disability were recruited to take part in focus groups and interviews aimed at understanding the lived experience of invisible disability on social life and within the workplace. Data were analyzed using Braun and Clarke’s reflexive thematic analysis, identifying themes of (1) Incongruity between looking and feeling, (2) The impact of others, (3) Adaptation, (4) Talking about disability, (5) (Un)supported and (un)accepted, and (6) Discrimination/legislation. The findings indicate that the language, attitudes and behaviour of others are important to support inclusion in the social and working lives of those with invisible disabilities. Persons without a disability should be willing to talk about disability, see the strengths of those with an invisible disability and be mindful of language used around visibility. Suggestions relating to what we can do to be better support those with an invisible disability in society are discussed.

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